NEW MEXICO LEGISLATION
ALS DAY AT THE NEW MEXICO STATE CAPITAL
On February 18, 2025, the New Mexico State Capitol in Santa Fe hosted ALS Awareness Day, organized by ALS New Mexico. This event aimed to raise public awareness about amyotrophic lateral sclerosis (ALS), a progressive neurodegenerative disease affecting approximately 150 New Mexicans at any given time.
The event featured personal stories from individuals and families impacted by ALS, emphasizing the urgent need for accessible medical services, adaptive equipment, and comprehensive support systems. Among the attendees were Tammie and Joe Belland, who represented the ALS community and shared their experiences to highlight the challenges faced by those living with the disease.
In conjunction with the event, Senate Memorial 4 was introduced by Senators Leo Jaramillo, Antonio Maestas, Jeff Steinborn, Michael Padilla, and Craig W. Brandt, officially declaring February 18, 2025, as "ALS Awareness Day" in the New Mexico Senate. The memorial acknowledged the significant impact of ALS on patients, families, and communities, and recognized the services provided by organizations like ALS New Mexico.
ALS New Mexico continues to support individuals and families affected by ALS through funding, direct services, and advocacy efforts. Their initiatives include providing respite grants, access to clinical care, and adaptive equipment, as well as raising awareness through educational opportunities.
On February 5, 2024, advocates, families, and legislators gathered at the New Mexico State Capitol for ALS Awareness Day, organized by ALS New Mexico. The event spotlighted the experiences of those affected by ALS, a progressive disease impacting around 150 New Mexicans.
Tammie and Joe Belland represented the ALS community, sharing their story and putting a personal face to the cause. Their presence emphasized the real-life impact of ALS and the importance of continued advocacy.
Attendees met with lawmakers to push for increased funding and support for ALS care, equipment, and research. The day fostered community and highlighted the need for collaboration in the search for effective treatments and a cure.
In 2023, ALS New Mexico received $395,000 in state funding, thanks to Senator Moe Maestas' leadership. With 94% of that going directly to programs, we provided vital support to ALS patients and their families—including financial grants, care through the ALS Clinic at UNMH, and other essential services.
We’re deeply grateful to Senator Maestas and Senator Leo Jaramillo, who co-sponsored ALS Day, for their unwavering support. Their commitment ensures no New Mexican faces ALS alone.
As the only statewide organization dedicated solely to ALS services, we offer equipment loans, support groups, advocacy, and education. This work is made possible by community and legislative support.
Looking ahead to 2024, we’re seeking continued funding to sustain and grow these crucial programs. ALS demands a comprehensive care approach, and without this support, many families would face overwhelming challenges.
We urge lawmakers to prioritize ALS funding and invite our supporters to raise their voices. Your advocacy matters. Together, we can continue to stand strong for every New Mexican impacted by ALS.
Thank you for standing with us. Let’s keep pushing forward—together.
ALS LEGISLATIVE CHAMPIONS
