The Access for All in ALS (ALL ALS) Consortium is a nationwide effort, funded by the National Institutes of Health (NIH), that aims to make ALS research more accessible to all people impacted by the disease. ALL ALS brings together people living with ALS, families, caregivers, researchers, clinicians, and partners from government agencies, industry, and nonprofit organizations— all working toward the same goals: finding effective treatments and, one day, creating a future without ALS.
Through this large, ongoing study, the consortium is collecting clinical data, biological samples, and digital health information from thousands of participants across the country—including people living with ALS, those at genetic risk, and healthy volunteers. Together, this information will help scientists better understand ALS, improve clinical trials, and, ultimately, enhance quality of life for those affected.
What We’re Working Toward:
Building a powerful ALS research resource
- Enrolling participants at all stages of disease progression, as well as volunteers without ALS and people at genetic risk
- Collecting blood and spinal fluid samples over time to create a national repository of biological fluids
- Connecting clinical data, digital measures, and patient-reported outcomes to give a more complete picture of ALS
- Collaborating with programs like AMP ALS, Target ALS, and the CDC National ALS Registry to link datasets, reduce duplicative research, and accelerate discovery
- Extending research opportunities to as many ALS community members as possible, by prioritizing research accessibility and engagement
Promoting transparency and access
- Making data and samples available to approved researchers around the world through secure data-sharing agreements
- Ensuring all shared information protects participant privacy and confidentiality
Advancing treatment development
- Filling knowledge gaps that can make future trials faster and more effective
- Helping identify new drug targets for more effective and personalized treatments
- Discovering strategies for disease prevention and early diagnosis
Key Points about ALL ALS:
- People living with ALS can participate completely remotely.
- There are more than 30 ALL ALS clinical sites across the U.S. and Puerto Rico.
- Almost anyone can participate in ALL ALS, due to intentionally broad eligibility criteria
- ALL ALS is designed, specifically, so people can participate in ALL ALS and experimental drug trials at the same time
- Data and samples collected will be available to approved researchers, helping progress ALS research and advance drug and treatment innovation
- ALL ALS is collaborating with other research studies, including Target ALS, the ALS Natural History Study, the CDC National ALS Registry, and ALL FTD.
How to Get Involved
If you’d like to participate or learn more, visit our website and fill out an Interest Form—one of our Patient Navigators will reach out to help you get started.
- Visit our website
- Fill out an interest form:
- Follow us on Instagram: @all_als
- If you have any questions about the study, email us at info@all-als.org
Together, we can make strides towards a future without ALS.